Together, Let's Shoot for SYNGAP1
Our son Jackson was diagnosed with SYNGAP1-Related Disorder, a rare genetic condition that causes intellectual disability, epilepsy, autism, and more.
We are hosting the 1st Annual Shoot for SYNGAP1 | Aiming for a Cure benefiting CURE SYNGAP1 to raise awareness and support research efforts focused on improving treatments and creating hope for children and families affected by SYNGAP1.
About SYNGAP1
SYNGAP1-Related Disorders are rare genetic neurological conditions that affect more than 500 families across the United States and more than 1,800 worldwide. Caused by a change in the SYNGAP1 gene, these disorders disrupt critical brain development and can lead to intellectual disability, epilepsy, autism, and significant communication challenges.
CURE SYNGAP1 is a family-led nonprofit dedicated to funding research, advancing therapies, and supporting those impacted by SYNGAP1-Related Disorders. Events like this play a vital role in accelerating progress and expanding global awareness. This life-changing mission relies entirely on the dedication of our community and the generosity of supporters like you.
As a family navigating a rare disease, we've experienced the challenges, uncertainty, and missed milestones that come with Jackson's SYNGAP1 diagnosis. Despite the hurdles he faces, Jackson continues to inspire us every day with his resilience, determination, and joy.
We are aiming for a cure because kids like Jackson deserve a brighter tomorrow.
Your support is what makes that tomorrow possible.
$15,000 Goal
$4,469
Total Raised
SHOOT FOR SYNGAP 2026 SPONSORS!
Thank you for supporting Shoot for SYNGAP!
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Other Ways to Give
Text SHOOT4SYNGAP to 76278 or mail a check to:
CURE SYNGAP1
Attn: Shoot for SYNGAP1
PO Box 601119
Los Angeles, CA 90060-1119
Hosted By Carley & Eric Ward
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