Save the Date: Take a Swing Fore Batten 4 - March 15-29!
We can hardly believe that we are entering our fourth year of this tremendous event! For 2021, the auction will be entirely online so you can donate, bid and win from the comfort of your home! We are so grateful for all of the support we have received. With your generosity, we continue to meet out mission of funding research projects and supporting the Batten community.
The ForeBatten online silent auction will go live on March 15th and conclude on March 29th at 8 pm PT. If you are interested in donating an item (golf package, sports memorabilia, gift certificate etc.) to the silent auction, please click here: Donate an auction item or contact Stan at 440.725.3395, email@example.com.
About ForeBatten Foundation
ForeBatten Foundation is a 501(c)3 with a mission to fund pioneering research and support the Batten community. We are working with researchers as they develop multiple gene therapies to detect, treat and potentially cure Batten disease. Rare diseases like Batten do not receive the same government assistance as other, more prevalent diseases, so we must join together as parents and caring individuals who are not willing to accept the fate of our children.
About Batten Disease
Juvenile Batten disease (CLN3) is a rare, fatal, inherited disorder of the nervous system that typically begins in childhood. The first noticeable sign of juvenile Batten disease is often loss of vision, which begins between the ages of 5 and 10 years in previously healthy children and tends to worsen rapidly. Eventually, young adults become blind, bedridden, and physically and mentally incapacitated, requiring 24-hour care until premature death.