Take a Swing Fore Batten 4
We did it! With the help of our enthusiastic and generous donors we reached a HUGE milestone - together we raised a staggering $1,200,000!!! Thank you to everyone who donated, bid, won, and cheered us on.
Our event has now ended. To donate visit, forebatten.org.
If you have any questions contact Stan at 440.725.3395, [email protected].
Thanks a million!
About ForeBatten Foundation
ForeBatten Foundation is a 501(c)3 with a mission to fund pioneering research and support the Batten community. We are working with researchers as they develop multiple gene therapies to detect, treat and potentially cure Batten disease. Rare diseases like Batten do not receive the same government assistance as other, more prevalent diseases, so we must join together as parents and caring individuals who are not willing to accept the fate of our children.
About Batten Disease
Juvenile Batten disease (CLN3) is a rare, fatal, inherited disorder of the nervous system that typically begins in childhood. The first noticeable sign of juvenile Batten disease is often loss of vision, which begins between the ages of 5 and 10 years in previously healthy children and tends to worsen rapidly. Eventually, young adults become blind, bedridden, and physically and mentally incapacitated, requiring 24-hour care until premature death.