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Take a Swing ForeBatten 3

March 2nd, 2020

If you are interested in donating an item or becoming a sponsor, contact Stan Kahn @ 440.725.3395

Silent auction bidding begins 2/18!

 

Event Timeline (MST)

5:30 pm - Registration
5:30 pm - Golf & Open Bar
6:00 pm - Dinner Buffet
8:00 pm - A Message From Our Scientific Team
8:30 pm - Silent Auction Closes & Opportunity Drawing Winners Announced
9:00 pm - Event Concludes

 

Need a hotel?

Discounted rooms are available through our room blocks at Talking Stick Resort and Salt River Residence Inn.

Talking Stick Resort, 9800 Talking Stick Way, Scottsdale, AZ. Please call 1-(480) 850-7777, reference Booking ID: Forebatten 2020, ID number: 19639

Salt River Residence Inn (book by 2/1/2020),  5351 North Pima Road Scottsdale, Arizona 85250. Reserve by calling 1-(800) 321-2211 and reference ForeBatten fundraiser or link.



What are we raising money fore?

Thanks to YOUR generosity, ForeBatten Foundation is actively sponsoring research aimed directly at CLN3-Batten disease. 

 

ASOs

This study, with Dr. Michelle Hastings, supports the testing of an approach to correct CLN3 gene expression using a nucleic acid drug platform called antisense oligonucleotides (ASO). These molecules are designed to target CLN3 with the aim of inducing the production of functional proteins from the defective gene as a way to prevent neurodegeneration. 

SMALL MOLECULES

We are also funding research in the Weimer lab, centered on identifying novel therapies for the treatment of CLN3-Batten disease including small molecules & ASO's. To better define whether selected drug targets are improving efficacy and rescuing CLN3 function, the team is using an approach called BioID, which relies of proximity-based labeling, to map the CLN3 protein interactome. 

GENE THERAPY

ForeBatten is advocating for gene therapy research, focusing on pre-clinical studies of innovative AAV delivery methods to find the most effective and safe way to reach as many neuronal cells as possible. While our emphasis is CLN3-Batten Disease, this research will ultimately help many patients suffering from a wide range of neurodegenerative diseases.

 

To learn more about the Kahn Family and Batten disease, visit www.forebatten.org


Contact Us

Fore Batten Foundation
Questions? Contact Stan Kahn

Location

Topgolf, Talking Stick Way, Scottsdale, AZ, USA

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