- Join Felipe's SYNGAP1 Fight -
Whether attending, supporting from afar, or interested in being one of the evening's sponsors, your partnership brings us one step closer to a cure. Click below to make a difference!
Food | Music | Raffle | Cash Bar
In August 2024, Felipe was diagnosed with a rare genetic disorder called SYNGAP1-Related Disorders (SYNGAP1 or SRD). SYNGAP1 is a neurological disorder that causes a spectrum of symptoms including epilepsy, speech and language disorders, intellectual disabilities, autism, behavior and sleep disturbances.
Shortly after receiving Felipe's diagnosis, we found CURE SYNGAP1 (formally known as SynGAP Research Fund). The community and access to resources that we've received from CURE SYNGAP1 have been invaluable. Clinical trials that could lead to a cure are on the horizon, but research requires funding, and that's where we need your help.
Join us on November 28th for a festive evening of food, music, and fellowship. All proceeds from this event will go directly to CURE SYNGAP1, the only non-profit funder of SYNGAP1 research in the U.S, and will support its mission to fund critical research, raise awareness, and provide hope for treatments and, ultimately, a cure.
Our son is a happy, beautiful boy whom we treasure. He needs us to fight alongside him to move him one step closer to a brighter future. On behalf of Felipe, and every family affected by SYNGAP1, we thank you for your partnership and support.
Special Thanks to Our National Sponsors
Hosts | Alana & Brian Sheehan
