ForeBatten 2022

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About ForeBatten Foundation & Take a Swing Fore Batten

After receiving their daughters juvenile Batten disease diagnosis in early 2017, the Kahn family created ForeBatten Foundation. "Fore" means "ahead" or "forward," and those familiar with golf know it's a term you hear when something unavoidable is heading your way-much like Batten disease. The Kahn family is taking a swing at Batten disease for all children and families affected.

The annual online auction in its 5th year, will again feature exclusive golf packages, once in a lifetime experiences, and countless other ways to give. Let's make this year's silent auction the BEST GOLF AUCTION IN THE WORLD!!!

Funds raised at Take a Swing Fore Batten events over the past five years have directly benefited the Batten community and funded critical research.

From Batten Families:

"Our Batten girls take up so much time, energy, and patience that our other children often don't ever get alone time with mom and dad or any normal time. We could sleep in, snuggle, talk about silly things or serious things without interruption. We played and had fun. We may have spoiled them a little, but it was worth it. Thank you Fore the Journey Fund, for giving us an opportunity to reconnect with our children who endure this disease in only a way a Batten sibling can" Batten Mom, Beth

From the Researchers:

"ForeBatten has paved the way for new research studies by providing lab resources including new animal models and screening platforms for drug development. We are incredibly excited to push these initiatives forward and have a positive impact on patients and their families." Jon Brudvig, PhD Weimer Lab, Sanford Research, Assistant Professor, Pediatrics; University of South Dakota Sanford School of Medicine

"ForeBatten supported research enables the discovery and development of new therapeutic strategies for CLN3 Batten. New research tools benefit the entire Batten disease community and will impact other neurodegenerative diseases, such as Alzheimer's disease. Innovative research and approaches to understanding and treating CLN3 Batten are critically important to finally finding an effective treatment for the disease. ForeBatten Foundation, through its commitment to and support of research, is helping us move towards that goal." Michelle L. Hastings, PhD, Director, Center for Genetic Diseases, Professor, Chicago Medical School Rosalind Franklin University of Medicine and Science

"Support from ForeBatten has made it possible to explore new areas of research that have the potential to improve quality of life for affected children and their families. This award has been essential in moving the field of Batten research forward. We are proud and humbled to have this invaluable support." Jonathan D Cooper, PhD, Professor of Pediatrics, Genetics and Neurology Washington University School of Medicine, St Louis