Sketch 3 - Remi and Rori
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Our NF journey began the day Remi was born. She entered the world with a bowed leg and a foot deformity caused by Neurofibromatosis Type 1 (NF1). Since then, she has faced challenge after challenge with incredible strength. Remi has undergone multiple surgeries, countless doctor appointments, MRIs, and monitoring for her optic glioma. She has also endured painful tumors, with some requiring removal.
When our youngest daughter, Rori, was also diagnosed with NF1, our journey took on a new meaning. While NF has not significantly affected her yet, we know the uncertainty that comes with this condition. We travel to multiple states several times each year to see specialists and ensure both girls receive the best possible care.
NF has shaped many parts of our lives, but it does not define our daughters. Through every surgery, appointment, and obstacle, Remi and Rori continue to show courage, resilience, and joy. We believe God made each of them exactly as they are - unique, deeply loved, and wonderfully created.