We Stand Together - Evelyn
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My name is Mihla (Me-la) Tkach (Kuch). I'm 14 years old and I was born with NF. I'm the only person in my family that has NF. I really don't know what life would be without it. My mom says I wasn't diagnosed till I was 4 ½, right before entering kindergarten. My first pediatrician didn't catch it. So far all I do is get an MRI every 6 months to a year. I also have bumps everywhere, on my torso, back, arms, legs, etc. Inside me I have bumps on my spine, neck, brain, and lungs. They haven't grown or changed in a couple of years. I guess I'm lucky. I used to get tired quickly but this summer I made it through Disneyland without needing a wheelchair. Two summers ago, when we went to Dollywood I had to use one. It might have been all the hills. My hope for NF is a cure or at least something that slows the growth of my bumps. This isn't just for me. I want this for everyone that has NF.