Feeling Left Out - Taegon
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My mom tried to get me diagnosed from age one until age 10, but the pediatrician wouldn't listen. My mom knew I had it just from researching it herself. She finally convinced the doctor to send in a referral to neurology, where I was officially diagnosed at age 10. Thankfully, I didn't have any major tumors over those years.
I am now 13 and going into 8th grade. I've struggled throughout school. I needed speech, OT, and PT. I also have an IEP. I was recently diagnosed with ADHD and level 1 autism as well, which is common with NF1. I have multiple tumors throughout my spine, and I keep getting more bumps under my skin in numerous places. I struggle a lot socially because other kids think I'm weird or annoying, which is what my drawing represents, as I feel left out a lot of the time. I am not a fan of school because of this. We keep monitoring my NF1 with MRIs.