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Colorful Explosion - Emery
$20 current bid
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Emery is 6 yrs old and has been impacted with NF1 with fibromas, cognitive limitations and bone deformities that include scoliosis, torticolosis and her foot bones not to align appropriately and inhibits her ability to walk with a normal gait and her balance. Her art work is a picture of the mountains that she wants to hike one day (and not be carried).
Despite the diagnosis- Emery excels at singing, swimming and playing piano. There isn't any family history of NF1 so she had a "de novo or spontaneous mutation" in the NF1 gene. She is the youngest of 3 siblings that are there to support and love her