Meet this year's Queens of Mardi Gras, Jess Rosini & Beth Scolis, educators, advocates, champions, and loving relatives.
Mother, Jess, and Grandmother, Beth, are fierce advocates for nine year old Dominic and other young epilepsy warriors who face similar challenges.
Dominic had his first seizure in August 2017, embarking on a long road of hospitalizations, ambulance rides, doctors appointments, medications, and more tests than any nine-year-old should endure. At its peak, Dominic was having 1,000 seizures a day. He was eventually diagnosed with Doose Syndrome/Myoclonic Astatic Epilepsy, a rare and severe form of childhood epilepsy that is notoriously resistant to medication.
After Dominic's diagnosis, Jess & Beth began to discover just how misunderstood the disorder was and made it their mission to make a change. In the last six and a half years, the family has not only organized educational and fundraising events, but led the charge in creating seizure-safe school legislation in Pennsylvania. Thanks to their hard work, Governor Wolf signed Act 84 into law in 2020, thus creating the DOMinate Epilepsy Law in Pennsylvania. This legislation promotes the training of school personnel in seizure recognition & response, to assure a safe environment for all. The family is continuing to work to strengthen the law to require training amongst school personnel.
Both Jess and Beth are honored to be this year's Mardi Gras Royalty!