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 ABOUT JAX

Jax was diagnosed with a single gene defect in the MTRFR gene on October 30, 2014. The MTRFR gene mutation causes him to be non-verbal, fed through a feeding tube, affects his ability to walk and optic nerve atrophy which leads to blindness. It is caused by a defect in the function of mitochondria within the cells of the body. 

Our goal is to slow the progression of this disease while working towards a cure for Jax and future generations. This fundraising event directly benefits gene therapy research which looks to be a promising life-extending treatment for Jax who is now 10. 

MTRFR (C12orf65) Symptoms 

  • Ataxia
  • Optic Atrophy
  • Peripheral Neuropathy
  • Shortened Lifespan
  • Endocrine/Metabolic Defects
  • Neuromuscular Disorder

 

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EVENT DETAILS

  • 11:00 AM: Registration opens
  • 12:30 PM: Safety Briefing
  • 1:00 Shoot Begins
  • 5:00 Gun Raffles & Whiskey Raffle
  • 6:00 Live Music Begins

 

$100Junior Shooter (18 and under; concert ticket included)
$125 Individual Shooter (concert included)
$500 Four-man Team (concert included)
$150 Golf Cart (seats 4)
$25 Concert Ticket

 

SPORTING CLAY FORMAT
100 Targets

4-Person Teams

Team, Individual & Junior Awards will be presented

Mulligans Available for Purchase

  • 1 for $10 or 12 for $100
  • A Mulligan gives you an opportunity to re-shoot a target
  • Max score is 100 
  • Mulligans must be purchased before the shoot begins


FOOD

Food will be available to purchase. 


CONCERT DETAILS

Live Texas Country music starts at 6:00 PM. Bring your own lawn chair and BYOB.


 

If you're interested in paying with cash or check, please email [email protected].

 


We are looking forward to this event and your participation! All proceeds benefit gene therapy research for MTRFR through the Hereditary Neuropathy Foundation, a non-profit 501(c)3.

Donate Now

Help our cause by contributing to our fundraising efforts.

No act of generosity is too small to make a difference.

$100,000 Goal

$7,000

Total Raised

We welcome item donations!

Donate an Item Now

Hosted By

Hereditary Neuropathy Foundation
Contact Lindsey Flynt

Location

Defender Outdoors Clay Sports Ranch, 8270 Aledo Road, Fort Worth, TX 76126, USA

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