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Online registration is now closed you can register at the event!
October 12, 2024 - Registration Opens at 11:00am
ABOUT JAX
Jax was diagnosed with a single gene defect in the MTRFR gene on October 30, 2014. The MTRFR gene mutation causes him to be non-verbal, fed through a feeding tube, affects his ability to walk and optic nerve atrophy which leads to blindness. It is caused by a defect in the function of mitochondria within the cells of the body.
Our goal is to slow the progression of this disease while working towards a cure for Jax and future generations. This fundraising event directly benefits gene therapy research which looks to be a promising life-extending treatment for Jax who is now 10.
MTRFR (C12orf65) Symptoms
- Ataxia
- Optic Atrophy
- Peripheral Neuropathy
- Shortened Lifespan
- Endocrine/Metabolic Defects
- Neuromuscular Disorder
EVENT DETAILS
- 11:00 AM: Registration opens
- 12:30 PM: Safety Briefing
- 1:00 Shoot Begins
- 4:30 Gun Raffles & Whiskey Raffle
- 5:00 Live Music Begins
$100Junior Shooter (18 and under; concert ticket included)
$125 Individual Shooter (concert included)
$500 Four-man Team (concert included)
$150 Golf Cart (seats 4)
$25 Concert Ticket
SPORTING CLAY FORMAT
100 Targets
4-Person Teams
Team, Individual & Junior Awards will be presented
Mulligans Available for Purchase
- 1 for $10 or 12 for $100
- A Mulligan gives you an opportunity to re-shoot a target
- Max score is 100
- Mulligans must be purchased before the shoot begins
FOOD
Food will be provided for all shooters. Dickey's BBQ will be served compliments of Roland Dickey Jr.
CONCERT DETAILS
Join us for an evening with The Voice's season 11, Austin Allsup. Music starts at 6PM. Concert tickets are just $25 and include access to our beer and wine coolers.
If you're interested in paying with cash or check, please email [email protected].
We are looking forward to this event and your participation! All proceeds benefit gene therapy research for MTRFR through the Hereditary Neuropathy Foundation, a non-profit 501(c)3.
$100,000 Goal
$88,985
Total Raised